On Monday, August 1, my interview with Jessica Haynes, mother of Abigail Haynes, will air on WCHE. Abigail was born with a serious disease called #venous malformations, a painful condition where veins are abnormally formed and dilated causing lesions. Now 4, “Abi,” along with her parents, flies from Atlanta, Ga., to Denver, Co., each month for surgery of the affected veins, which happen to be in her face. She just had her 22nd procedure. Despite the severity of the diagnosis, she’s always smiling, just like she is in this picture.
I was grateful for the opportunity to speak with Jessica, who’s courageously raising awareness of her daughter’s disease through Abigail’s Angels Foundation. The foundation recently teamed up with The Kolbe Fund, a #Chester County, Pa.-based non-profit with the simple goal of helping #families who need to travel for the care of their #sick children. The Kolbe Fund helps families with their lodging and parking expenses, along with providing “Kolbe kits,” bags filled with items useful during such extended stays, including activities for siblings. The groups have paired together for Abi & Friends on the Road to Health Virtual 5k, an event that is neither competitive nor location specific. This is happening between Aug. 7 to Aug. 14, and you can help out by participating or donating to the cause.
In fact, participants from all across the United States and even beyond, are walking, running, biking, swimming or maybe even kayaking to support the event. What that will do is raise money for both organizations so that other #children, with diagnoses requiring medical travel, can receive financial support. I hope you will consider registering for this event, and showing your support from wherever your are! If you register by July 25, you will receive a T-shirt of tank top in the size of your choice!